When my sister inlaw Liz was training for her triathalon last year she wanted to run for a cause. The woman that babysits her son (our nephew Patrick) told Liz about her neighbors The Reddington family and their daughter Grace who has rhett syndrome. Liz and my brotherinlaw Chris met the Reddingtons and Grace and there was in instant bond between the two families. They have since become close friends.
Liz completed the grueling 12 hour race this past summer and said Grace's spirit kept her going. She raised more than $3000 for Rhett Syndrome research. Here is a video about Grace and Rhett syndrome. Turn your volume up so you can hear U2's song which could have been written for Grace.
Grace the Movie
Liz completed the grueling 12 hour race this past summer and said Grace's spirit kept her going. She raised more than $3000 for Rhett Syndrome research. Here is a video about Grace and Rhett syndrome. Turn your volume up so you can hear U2's song which could have been written for Grace.
Grace the Movie
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